Tyler Crumsey has Duchenne Muscular Dystrophy. It’s a progressive, muscle wasting disease that’s one of nine different types of Muscular Dystrophy. In this particular strain, there’s an absence of an essential protein in the muscles that keep them intact. It has robbed Tyler of his ability to walk, and he is in a wheelchair.
However, it hasn’t taken away his fighting spirit, his bright smile, or the strong, supportive arms of his family and friends.
Tyler is the son of longtime Storage World employee Amanda Gramling. According to Jack Johnson, owner of Storage World, “Amanda watched Tyler go from being a bit clumsy to the point where he had to crawl up the stairs to get to bed.” Tyler was diagnosed at the age of 8 with Duchenne’s , and since then his mother and his older brother Brandon have been responsible for assisting Tyler in all the everyday actions that able-bodied people take for granted. This video may illustrate how Tyler and his family struggle with the disease, but it also demonstrates the spiritual power and unflagging optimism that keeps them going.
One of Brandon’s primary tasks is to lift Tyler into Amanda’s car. This small act takes on a greater significance this year, as Tyler has been named the State of Georgia’s Ambassador for the Muscular Dystrophy Association (MDA.) He’s required to travel throughout the state and make public appearances for the MDA, providing inspiration for others that are stricken with the same disease. A wheelchair lift outfitted into a van would make Tyler’s job as MDA Ambassador much easier, but first the funds must be raised to purchase the lift.
Through grassroots-type events such as community garage sales and donation drives, the “Help Lift Up a Life” campaign hopes to raise the $30-$35,000 needed to purchase Tyler’s wheelchair lift. There’s an event coming up this weekend on Saturday, November 3, from 9am to 2pm at the Storage World location on 490 Eagle’s Landing Parkway in Stockbridge, Georgia. For $20 you can set up a booth and sell your “treasures,” or you can attend with a friend and shop through all the bargains. All proceeds go toward Tyler’s fund. If you’d like to participate, call 770-474-2266.
Storage World has offered to match all donations up to $5,000 as well. For more information on how to volunteer or make a donation, visit the Storage World website to make a direct donation, or visit any SunTrust Bank and tell them you’d like to donate to the Tyler Crumsey Special Needs Trust.
Inspired by Tyler’s story? Follow his progress on Storage World’s Facebook page at www.Facebook.com/StorageWorld.